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National Walk for Epilepsy

Dorothy Gale! This morning when I woke up in my own bed, I finally had an explanation to my recent eight day odyssey. I had survived three (?) Emerald Cities in eight days. I photographed two epilepsy awareness walks (Here are photos from yesterday’s National Walk for Epilepsy). My adventure included lions and super shuttles and service dogs.  On Friday night, there was a tornado warning in Washington, D.C. Two nights earlier, the storm nearly trapped me in Chicago.

 (bryan farley)

The inscription if from Proverbs 28; the lion guards the Law Enforcement Memorial in Washington, D.C.

My blind faith was tested often the last eight days. When I photographed the Epilepsy Foundation of San Diego County fundraiser, I felt disoriented. I was in the valley of the blind… and I was not the person who had one eye. I needed a service dog just as much as anyone else.

 (bryan farley)

On Wednesday, I left Oakland for Washington. Because of the Midwest storm, I barely made my connecting flight. When I ran onto the plane, the flight attendant told me that they were “waiting for me.” I sat in the back middle seat. I swear, the woman sitting at the window seat said, “soon you will wake up from this dream.” REALLY. The man sitting on the aisle was afraid to fly. He started playing music. First song, “Into the Mystic.” (Let your soul and spirit fly into the mystic) I wish I could make this stuff up.

The National Walk for Epilepsy VIP Reception was held at The Meed Center for American Theater on Friday, April 19, 2012. The National Walk for Epilepsy is on Saturday, April 20, 2013 on the Washington Monument Grounds. (bryan farley)

Service dogs attended every epilepsy event I photographed in San Diego and Washington, D.C. Eventually, I began trusting their presence. I started noticing that every wrong turn led somewhere right. I almost felt home. My second night, I missed my shuttle. I was offered a smoking room for free plus benefits. I took it and felt as if I had traveled back in time to the 70′s.  I also met an amazing person who works for the hotel who I hope to see again this summer and shoot a wedding. When I found Proverbs 28 and the Law Enforcement Memorial (my father was a law enforcement officer), I had gotten off at the wrong Metro stop. I walked outside and found the Buildings Museum displaying large “Home” signs… almost home. See The Just Right Home.

 (bryan farley)

I booked the wrong hotel. It almost never happens. Instead of staying at my regular DC hotel, I booked an Embassy Suites. (It is my new regular hotel.) There was a big lion outside with emerald words. In case I forgot, there was Road Work ahead. The hotel digital radio station also played “road” or “travel” theme songs too. Oh, an thank you Bruno for recommending Shazam!

The National Walk for Epilepsy VIP Reception was held at The Meed Center for American Theater on Friday, April 19, 2012. The National Walk for Epilepsy is on Saturday, April 20, 2013 on the Washington Monument Grounds. (bryan farley)

At the National Walk for Epilepsy VIP Event, there was the tornado warning seen in the featured photo, there was a little princess and a remodeled theater showing a MLK performance Mountaintop and a George Bernard Shaw adaption (My Fair Lady.) I thought about George Bernard Shaw’s popular quote that “the road to Hell is paved with good intentions.”

 (bryan farley)

But what about the road not taken or the dirt road or … the road taken with thousands of your best friends? What happens when we put someone on our shoulders… or we let someone help us?

 (bryan farley)

Staff wore bright yellow shirts this year with the phrase “Walk This Way.” I sang Aerosmith all day wondering how I could build the song’s refrain into an epilepsy awareness campaign. We already have TalkAboutIt, and it is a fine site, but it is not Rock and Roll. (Walk This Way/ Talk About It??? No! Grunberg? What can we do?)

 (bryan farley)

If the “Walk This Way” shirts were equivalent to “follow the yellow the brick road,” then The Keep Calm and Walk On shirts were similar to “there’s no place like home.” I loved the shirts. The color popped against the blue sky and the person talking to the man on stilts reminds me of Glinda talking to The Wizard.  (Pay no attention to the man on stilts.)

 (bryan farley)

With my blind faith restored, I began thinking of home, both as a destination and metaphor. “Can’t Find My Way Home” the song by the musical group Blind Faith, includes the line “I’m wasted and I can’t find my way home.” I woke up in my bed, but I have not found Home.  I thought I had the answer, but I only know that I must start at the new finish line… AND this next part is important. Home must provide the space to play Blind Faith (Can’t Find My Way Home), Blake Shelton (Home), The Beatles Golden Slumbers), and Stephanie Mills (Home). Don’t tell anyone, but I might compromise on the first three, but not with Stephanie Mills.


Operating Instructions – Photographer With Epilepsy

I am in the Washington, D.C. area preparing for the National Walk for Epilepsy. Last Sunday, I photographed the 2013 Sharon’s Ride.Run.Walk for the Epilepsy Foundation of San Diego County, and though I processed the photos, I have not fully processed the experience. During the San Diego walk, I felt the emotional cost of being a photographer with my neurological condition. I see things, often from different perspectives. I am often wrong I perceived something before my time. I create. I believe, hope and dream of flying… and I often crash. My condition has also trained me to rinse and repeat. Often. I have bruises and broken wings.

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

Every bird needs a little love, whether we have epilepsy and/or broken wings. Vultures, Ravens and Blackbirds need love. Sheryl Crow needs love. Some of us might have the unreasonable demand that the world stop spinning so fast, but I can still pray for love.

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

If I could travel quickly somewhere, I would fly home to Oakland, California. Anne Lamott is speaking at my favorite local bookstore A Great Good Place tonight. She writes about birds and prayer (depending on your background, you might argue either point). One book is called Imperfect Birds. Her book about prayer is called “Help, Thanks, Wow: The Three Essential Prayers.” As a person with epilepsy, I am never far from those three prayers.

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

During my flight here yesterday, I had an imaginary conversation with Anne. I have THIS GREAT BOOK IDEA and I wanted to share it with someone besides the imperfect strangers I had met.  Although the more I think about my book sharing idea, I am starting to believe that God intended to send me as far away from Anne as possible. We are both saved from an embarrassing conversation and I can remember that God answers prayers. Sometimes, I just need to look for the answer. (Anaya means “God Answered.)  God answered with a sick sense of humor, “there will be plenty of time for me to embarrass myself later.”

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

Does every dog have just one day? This Mutt wants a lot of good days, and today is not one of them. I want to run at my daughter’s track practice while listening to the Pandora Paul McCartney and Wings station before going to the bookstore. I want to imagine a world where dogs fly and love travels through wires. I want Wikipedia to answer my questions about God. I want to be spend more time being grateful about the car accident I survived one year ago today that shook my confidence and redirected my path. I want to be more thankful, but I am stuck at prayer number one. Help.

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

When I first saw this photo, I saw the wall of color; I missed the little explorer. I should know better. Real exploration requires spending real emotional energy. While I might want a happy explorer, it is unreasonable to ask someone to be brave AND happy. Sometimes exploration can be fun. More often, when exploring jungles for real or metaphorical animals we find something scary.

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)At the walk, many teams were named after animals. Were the lions symbols of our bravery or reminders of our fragility? Did the monkey remind us of our strength, selfishness or … the winged monkeys from the Wizard of Oz?  (Those flying monkeys still scare me.)  Some of us might want all of our witches to be good we do not need all of our experiences to be happy. It is alright to fear the bigger creature.

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

Life can be difficult. I do not need some old greek myth or new 311 song to convince you that everyone has a difficult path. Life can also be amazing. During the walk, the DJ may have played Amber, by 311.

Brainstorm. Take me away from the norm. I got to tell you something. This phenomenon. I had to put it in a song… and it goes like

Whoa, amber is the color of your energy
whoa, shades of gold displayed naturally
you ought to know what brings me here
you glide through my head blind to fear

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

Many of us run blind day after day waiting for someone to tell us, “I do believe in you.” At our events, people believe, even when it rains in San Diego or when it will starts raining this weekend in Washington, D.C.  I searched for answers from the pages of “Talking to Girls About Duran Duran.”  This morning, I was amazed that God talked to me through the US Today. Baby I’m Amazed was a lead story. In my book, I am on the same page that discusses Paul McCartney and the song Baby I ‘m Amazed. The Greek God of synchronicity believes in me! It’s a start. (I am now going to reference my sentence when I thanked God for keeping me away from Anne Lamott tonight.)

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

There is another reason that I have the ability to believe and see. In a short period, my world has changed. When I was first diagnosed with epilepsy, these events did not exist.  People and organizations created events from nothing.  Where will Sharon’s Ride be in 14 more years when it turns 28?

The 2013 Sharon's Ride.Run.Walk for Epilepsy was on Sunday, April 14, 2013 at De Anza Cove at Mission Bay Park in San Diego, California. The event benefits The Epilepsy Foundation of San Diego County. (bryan farley)

Miracles are never ceasing, and even when it rains you can hear the sound of sunshine. Families and communities will be strengthened or rebuilt. The world will create new role models, just as the world gave me Rosie The Riveter.  Rosie reminds me to continue fighting with Valor during times of war and times of love.

Peace, Love and Purple

BF


Photography Portfolios – What Do We Do Next

One year ago today, Mark Murray and I presented a workshop about photography portfolios at the 2012 Spring JEA/NSPA National Convention. He and I have presented together for several years. How we present changes each time, because each convention space influences the presentation. The rooms are different sizes. Some conventions have more workshops and fewer people. Technology constantly changes, so we try to adapt. We try to keep it simple, while at the same time providing valuable information.

Mark Murray and Bryan Farley teach a Photography Portfolio Workshop at the 2012 Spring National Student Journalism Convention in Seattle, Washington. (Bryan Farley)

Mark and I practice simple complexity, a term my educator step-father referenced during the discussion thread of my Simple Man post.  In our presentation, we simplify many fast moving complex dynamics that we cannot always predict. (Dr. Hannah Fry explains complexity science during a short TEDx video, “Is life really that complex?”)  

 

Mark Murray and Bryan Farley teach a Photography Portfolio Workshop at the 2012 Spring National Student Journalism Convention in Seattle, Washington. (Bryan Farley)

How is complexity theory relevant? Well, we still teach students the simple lesson that “First Impressions” influence perceptions; however, photographers cannot control which image is viewed first. Now that online portfolios can be accessed as galleries, a potential portfolio reviewer (or customer) might see thumbnails with several photos. I cannot even control which galleries will appear first during a search (nor do I always want to control what will be searched.) Our simple lesson that weaker images “pull down” a portfolio actually is supported by the more complex technology shifts.  When students see fifteen photos on the screen, the students understand how a bad photo affects impressions.

At the 2012 Spring JEA Convention in Seattle, Mark Murray assists with the Photography Critique at the Seattle, Washington State Convention Center. (bryan farley)

Mark and I also assist Bradley Wilson with the large group photo critiques. There are a few hundred participants seated. The judges discuss what makes a good photo (or what does not.) We keep it simple, even though we realize that taking a moving 3-D object and putting it on a two dimensional surface is challenging.  What we choose to discuss is the simple complexity.

In the title, I ask What Do We Do Next? I had asked the question at the end of the discussion thread about Seattle when I was responding to one of the organizers for the 2014 convention. (I am one of the 2013 convention organizers where Mark and I present again.)  I have noticed recently that internet search has created a new level of complexity. My smart phone and my laptop are connected AND the search terms seem to influence my Pandora. My dreams might also be affected. Tonight in San Diego. I noticed that my internet searches reveal different responses than my searches earlier this week in Oakland, even for something as simple as a Jewel song lyric I had quoted. When I fly away tomorrow, I will check again.

When Mark and I started our portfolio presentation, students used matte board. We recommended that students purchase a domain. I own mine and I always search my own name in each city and find amusing results. Next year will we even suggest that students search? If so, what will they find?