Posts Tagged ‘advocacy’

Twitch and Shout – Advocacy Shaken and Stirred

Some of you may know that I have epilepsy. Some of you may know that next month I will have had epilepsy for thirty years. Others may know that I have been an advocate and spokesperson for several years. I speak, write, photograph and wear t-shirts. I was a Featured Blogger on the old Epilepsy Foundation site. Sometimes I am interviewed by news organizations. Sometimes celebrities talk to me. Other times, I am completely ignored and disrespected. It is possible that I forgot to shower and/or brush my teeth, which I must have forgotten to do so often the last year that I have decided to step back as a spokesperson.
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To help with my decision, I read some of my old posts. Five years ago I wrote about my first seizure. Below is an excerpt.

 

There were many reasons that I chose to hide having epilepsy. This is difficult to explain without sounding like a whiner.Read the rest