Posts Tagged ‘Candlelight Gala’

Four Seasons of Epilepsy Awareness

Winter, spring, summer or fall… but mostly fall.

 (bryan farley)

The 2017 Epilepsy Foundation of Northern California’s annual Candlelight Gala was last weekend. This year, EFNC held the event at the Four Seasons in San Francisco.

 (bryan farley)

I have had epilepsy for more than thirty years. I have been photographing epilepsy events for almost ten years. Those of us with epilepsy have been searching for ways to communicate what we experience. Besides writing and speaking about epilepsy, I give pictures.

Here are some of those images from the candlelight gala.

 (bryan farley)

Another person with epilepsy created a virtual reality experience. People without epilepsy could “take a first glimpse into the world of Jane.” As I understood the experience, Jayne says what she feels, thinks and hears after a seizure. Participants could see how Jane struggled to make sense of some of her surroundings.

 (bryan farley)

I would like to create a virtual reality experience application for smartphones that we could install for each season.… Read the rest


Pop Television and Epilepsy Heroes

“People sometimes say that the way things happen in the movies is unreal, but actually it’s the way things happen to you in life that’s unreal.” From the Philosophy of Andy Warhol (bryan farley)

On Saturday November 19, I photographed the 2016 Candlelight Gala for the Epilepsy Foundation of Northern California. (I have included the entire photo gallery from the Westin St. Francis with individual selections throughout this post.) Rick Harrison of Pawn Stars was the guest speaker.

 (bryan farley)

Since I had my first seizure when I was 16, I have been reconstructing reality. Each time I had a seizure, I felt as if I had entered a movie or television show. In 2004, something similar happened when my father shot himself. I felt like Humpty Dumpty in a surreal reality show. Coincidentally, November 19, 2016 was Survivor Day (International Survivors of Suicide Loss Day.)

 (bryan farley)

My father shot himself with a gun he purchased from a Las Vegas pawn shop. He built a Harley and drove an old 1940 Ford. Does it sound unreal that my father could have known our guest speaker before Rick Harrison became famous? What sounds real?… Read the rest