Posts Tagged ‘Epilepsy Foundation of Northern California’

Run Run Run

I have had epilepsy since I was 16. I had my first seizure one month after running the San Francisco Marathon. For many years afterwards, I continued running with limited success. Mostly, I ran away from the truth about my health.

 (bryan farley)

Last weekend, I attended the first annual Seize the Moment 5K walk/run for Epilepsy in Sacramento, California. The event was held at Gibson Ranch Park on March 26, 2017. March 26 is also “Purple Day,” an international day for people with epilepsy. There was a regular 5K followed by a color run with a lot of purple haze. My two children attended with me.

Photo Gallery Here

 (bryan farley)

Jodi Ortiz, race manager

The National Walk for Epilepsy in Washington, D.C. was the same weekend this year. I had gone every year since 2010, but I did not feel like going this year. When I first started attending, I was excited. I felt useful.… Read the rest


Defining Epilepsy and Creativity

This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you. (View my photos from the recent EFNC Gala if you wish too.)

 (bryan farley)

Last weekend when I was photographing the 2015 Epilepsy Foundation of Northern California Gala at the Fairmont San Francisco, I considered this week’s topic about Epilepsy and Creativity. Those of us with epilepsy are often asked about epilepsy and creativity. Does epilepsy make us more creative? Less creative? Is art therapeutic?

As with most things epilepsy, I think it depends on the definition… and who is doing the defining.

 (bryan farley)

I am 1 of 26 Americans living with epilepsy. As an artist with epilepsy, I think about creativity often. As a person with epilepsy, I may also think about creativity differently than many artists.

 (bryan farley)

Having epilepsy has forced me to be creative. I must be different; I must see differently.… Read the rest


EFNC Picture Day

Last week I photographed the Epilepsy Foundation of Northern California staff. We met near the Walt Disney Family Museum in the San Francisco Presidio.

 (bryan farley)

The Presidio is a historical military fort that guarded the Golden Gate.  Although the fort did not protect us from the wind, it provided many places to shoot. I especially enjoyed shooting next to The Walt Disney Family Museum. I have mentioned a rumor about Walt Disney having epilepsy; I feel more part of the family.

 (bryan farley)

The museum started a new exhibit with Disney and the surrealist (Salvador) Dali. The exhibit, “Disney and Dali: Architects of the Imagination” discusses how the visionaries became friends. They were innovators who found new ways to tell stories. The world found new ways to see. As advocates, we have similar challenges, but not necessarily the skill of Walt Disney.

 (bryan farley)

Since I photographed the EFNC staff, Disneyland celebrated their 60th anniversary. When Walt launched Disneyland, many doubted whether it would succeed. Visionaries often encounter this problem.… Read the rest


A Birthday Epilepsy Stroll (with my favorite aliens and the NSA)

Writing is linear. Living with epilepsy is not.

So this blog post has started to resemble my life. I am trying to translate it for “you normals.”

First: I had an amazing birthday on Saturday. My two children spent the day with me. They woke up early and followed the schedule that they had created. We left the house so that we could arrive early to volunteer at the 23rd Annual Epilepsy Stroll. I photographed the event for the Epilepsy Foundation of Northern California . My children were beautiful and supportive.

I felt blessed.

 

 (bryan farley)

Second: I noted how I had grown as a person with epilepsy during the last six years. Six years earlier, I attended my first epilepsy walk. In 2009, the epilepsy stroll was also on my birthday. I look different now. I act different. In 2009, I was afraid to identify as a person with epilepsy. In six years, I have become an outspoken advocate.… Read the rest


EFNC 2014 Candlelight Gala Dinner

I’m just a soul whose intentions are good

Oh Lord, please don’t let me be misunderstood

 

 (bryan farley)

In Oz

When I arrived for the Epilepsy Foundation of Northern California‘s 2014 Candlelight Gala, I noticed that I was “In Oz.” This was not the first time that I had walked into Oz. I have written about epilepsy and Oz earlier this year. In 2013, I discussed how having epilepsy felt very much like living In Oz. I am not the only person to make this connection. The Epilepsy Foundation of Minnesota completed their 31st Camp Oz this summer for youth with epilepsy. For some people, there is no place like home. For others, home feels like Oz.

 (bryan farley)

The Wizard of Oz is a universal metaphor… and perhaps more universal for people affected by epilepsy. Characters are transported to strange places. The characters forge unusual relationships and face unnecessary challenges.… Read the rest


Epilepsy Foundation of Northern California and Katherine Keeney

 The Epilepsy Foundation of Northern California’s Youth Summer Camp was held at CYO Camp in Occidental, California from July 28th to August 2nd, 2013. (bryan farley)

At the beginning of this month, I photographed  Katherine Keeney, the new Executive Director of the Epilepsy Foundation of Northern California, at the EFNC Youth Summer Camp in Occidental, California. SEE THE Photo GALLERY HERE!

The Epilepsy Foundation of Northern California’s Youth Summer Camp was held at CYO Camp in Occidental, California from July 28th to August 2nd, 2013. (bryan farley)

I also photographed the campers, counselors and the medical volunteers, including Dr. Joe Sullivan from UC San Francisco. In Northern California, those of us with epilepsy are fortunate to have UCSF and other excellent hospitals and research facilities in our region.

The Epilepsy Foundation of Northern California’s Youth Summer Camp was held at CYO Camp in Occidental, California from July 28th to August 2nd, 2013. (bryan farley)

We are also fortunate to have a new leader who also happens to have epilepsy. Being the leader of a regional epilepsy foundation and having epilepsy is quite rare. If my research is correct, the odds that someone will be a leader of an epilepsy foundation and have epilepsy are worse than the odds for just having epilepsy.

The odds are getting better now. At least it feels that way. Keep Calm and Fight On!… Read the rest